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This Just In

Illustration of Alice from Alice in Wonderland, dressed in a patient gown, falling down a rabbit hole surrounded by buttons that say “I accept” and privacy policies

The form asked my permission to share my health data. Then it wouldn’t let me say no.

To experience what patients have to do to opt-out of having their data shared, I went to doctor’s appointments in seven states. One clinic showed me how easily dark patterns force patients to share their data with big healthcare networks, even when the privacy form they’re signing explicitly says they can opt-out.

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Related: During my kid’s surgery, I was denied a copy of my consent form — then sent to a ghost office

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