Privacy
MyChart and a major hospital said I could opt out of sharing my health data. But they didn’t make it easy
My journey included a notary, a hospital that won’t honor its own policies and employees that gave me wrong information.
Privacy
Privacy
Patients: All my best tips on how to opt out of data sharing
Even when patients are told they can opt out, medical providers often don’t give patients instructions on how. For patients who are interested in opting out, here are my best tips on how to start.
Privacy
World’s largest health appointment platform dumps its web trackers after Markup investigation
Doctoralia said it was removing trackers that communicated with social media companies out of an abundance of caution
Privacy
Who’s buying your personal data: Disney, GM, your insurer and bank. Here’s what they get
Consumers asked a major data broker for their files. What they got back shows interest in how fat they are, how much they drink, and how likely they are to get a mammogram, among many other characteristics.
Privacy
Data brokers have detailed files on you. Here’s what’s in them — and how it impacts you
Data brokers collect thousands of details about your finances, health and habits. See what’s in your profile, who buys it and how companies use it.
Privacy
Brazil gives parents social media controls for their kids. Should the US?
California is leading on kids’ data privacy in the U.S. but still lags internationally.
Hello World
Californians can protect their personal data with one click. Help us test if it works
A new state tool lets you tell data brokers to stop tracking you. Will they comply? Help us investigate.
Privacy
Your medical provider might be recording your mental health care visits
Mental health providers are increasingly using AI technology to record conversations, raising privacy concerns among patients and practitioners.
Privacy
The form asked my permission to share my health data. Then it wouldn’t let me say no.
Dark patterns force patients to share their data with big healthcare networks, even when the privacy form they’re signing explicitly says they can opt-out.
Privacy
It’s easier for Californians to escape data brokers following a Markup investigation
The Markup and CalMatters showed how website code could make it harder for Californians to exercise their right to remove personal data. Now much of that code has disappeared.
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