Privacy
MyChart and a major hospital said I could opt out of sharing my health data. But they didn’t make it easy
My journey included a notary, a hospital that won’t honor its own policies and employees that gave me wrong information.
Sisi Wei
Chief Impact Officer
Sisi is the Chief Impact Officer at CalMatters and was formerly Editor-in-Chief for The Markup.
Before joining The Markup, she was co-executive director of OpenNews, where she envisioned and executed transformative initiatives for journalism. As part of her work, Sisi founded the DEI Coalition, a journalism community dedicated to sharing knowledge and taking concrete action in service of a more anti-racist, equitable, and just journalism industry.
She was assistant managing editor at ProPublica from 2018 to 2020, where she oversaw three editorial teams focused on news apps, interactive storytelling, and visual investigations. She also managed large, interdisciplinary investigations across the newsroom, one of which won the Pulitzer Prize for National Reporting in 2020. Sisi worked at ProPublica for seven years, investigating abuses of power and betrayals of the public trust across a range of topics, including health care, higher education, government, and immigration.
In 2021, IWFM awarded Sisi the Gwen Ifill Award, which recognizes an outstanding woman journalist of color whose work carries forward Gwen’s legacy, especially by serving as a role model and mentor for young journalists. In 2019, Sisi and her fellow Journalists of Color Slack admin team won the ONA Community Award, which recognizes a person or small team in online journalism that has made outsized contributions to creating tools or work environments that allow digital journalists to do their best work.
Sisi also serves on the board of News Revenue Hub.
Privacy
Patients: All my best tips on how to opt out of data sharing
Even when patients are told they can opt out, medical providers often don’t give patients instructions on how. For patients who are interested in opting out, here are my best tips on how to start.
Hello World
What it takes for voters to be resilient against AI misinformation
A conversation with political scientist Thessalia Merivaki
News
Defense tech has unleashed a new weapons boom in Southern California
An analysis of defense contracts charts the rise of defense spending — often in heavily Democratic districts
Hello World
Californians can protect their personal data with one click. Help us test if it works
A new state tool lets you tell data brokers to stop tracking you. Will they comply? Help us investigate.
Privacy
The form asked my permission to share my health data. Then it wouldn’t let me say no.
Dark patterns force patients to share their data with big healthcare networks, even when the privacy form they’re signing explicitly says they can opt-out.
Artificial Intelligence
Mamdani to kill the NYC AI chatbot we caught telling businesses to break the law
New York mayor says terminating the ‘unusable’ bot will help close a budget gap
Artificial Intelligence
Generative AI is eating culture. See how close it’s getting to disrupting dance
Dancers say their craft can’t be duplicated by AI. Our tests show they’re right — for now.
Impact
Dating App Rape Survivors File Lawsuit Accusing Hinge, Tinder of “Accommodating Rapists”
The civil lawsuit filed Tuesday, citing the Dating App Reporting Project, argues that dating apps could kick off serial rapists, but don’t.
Privacy
We caught companies making it harder to delete your personal data online
Dozens of companies are hiding how you can delete your personal data, The Markup and CalMatters found. After our reporters reached out for comment, multiple companies have stopped the practice.
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